top of page
Kirstin Maltby
- Jun 28
- 1 min
This week in Research
A regular update on recent Ehlers-Danlos Syndrome research
109 views0 comments
Kirstin Maltby
- May 6
- 3 min
Pediatric joint hypermobility: a diagnostic framework and narrative review - summary
A summary of the framework diagnosing the paediatric population who have geeealised joint hypermobility
308 views0 comments
Kirstin Maltby
- May 5
- 2 min
Zebras
Why do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...
118 views0 comments
Kirstin Maltby
- Feb 7
- 3 min
Ehlers-Danlos Tubies Stories
During Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS
144 views0 comments
Kirstin Maltby
- Feb 7
- 3 min
Feeding Tubes and Ehlers-Danlos Syndromes
Information on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.
143 views0 comments
Kirstin Maltby
- Dec 21, 2022
- 2 min
Review of Conservative Therapies for EDS Pain Management
Summary of review on conservative pain therapies researched for Ehlers-Danlos
89 views0 comments
Kirstin Maltby
- Dec 4, 2022
- 2 min
OSA and EDS
Obstructive Sleep Apnoea (OSA) is a common sleep-disordered breathing issue. A quick overview of EDS and OSA research.
145 views0 comments
bottom of page