EHLERS-DANLOS
AUSTRALIA

The book cover for the book Tired all the Time: Defeating Dysautonomia.

Recent researc articles in Ehlers-Danlo

A regular update on recent Ehlers-Danlos Syndrome research

A summary of the framework diagnosing the paediatric population who have geeealised joint hypermobility

Why do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...

A summary and quick review of Foggy, Faint, Fatgiued and Adrenaline

Kirstie’s story on having a feeding tube with EDS for Feeding Tube Awareness Week.

During Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS

Information on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.

Summary of review on conservative pain therapies researched for Ehlers-Danlos

Obstructive Sleep Apnoea (OSA) is a common sleep-disordered breathing issue. A quick overview of EDS and OSA research.

A review in 2021 by Toan Do, et al investigated the nutritional needs of the two overlapping conditions Dysautonomia and Hypermobility...

hEDS/HSD and its impact on social participation and interpersonal interactions and relationships.