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Health Professional Directory  

Are you a healthcare provider in Australia that has an interest in helping those with Ehlers-Danlos Syndrome? We are frequently asked for help identifying doctors who can help with diagnosis and allied health with knowledge of treatment. We are creating a register of providers who welcome being contacted and seen for Ehlers-Danlos Syndrome and related disorders

As patients with Ehlers-Danlos Syndromes require a multidisciplinary approach we welcome all healthcare providers who have knowledge of Ehlers-Danlos Syndromes to email us here at with your name, speciality, clinic name and location, additional information of relevance to your experience with Ehlers-Danlos Syndrome. 

Research Article Database

Recent articles on Ehlers-Danlos Syndromes and the related comorbid conditions listed in this database can be found here. If you wish to submit an article please send a link or the completed research article here

If you are a researcher wishing to submit recruitment information to the support group please contact us here. We are very supportive of research so please provide all the information and wording wanted in the post. We are also adding posts about recent research you can read in our blog section, 

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