About Us

This website was created as part of the Australian Ehlers-Danlos Syndrome Association and the associated support group. Started with two friends who bonded running our sister group Chiari and Syringomyelia Australia and both discovered they had Ehlers-Danlos. The Australian Ehlers-Danlos support group was started in 2013 to offer support to people with Ehlers-Danlos specifically. 

With over 3000 members in the support group, it is the biggest online Australian support group for Ehlers-Danlos Syndromes and growing daily. We also run a public page (feed on the left) where we post information from sources all over. This is where we have a link to "Visit Group" where you can access our private support group for those diagnosed with any type of Ehlers-Danlos Syndrome or Hypermobile Syndrome Disorder. 

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