Red 4 VEDS
Red4VEDS is a global campaign taking place every year on the third Friday of May (19/5/2023) during Ehlers-Danlos awareness month. Their aim is to raise awareness for the Vascular form of Ehlers-Danlos Syndrome which is a rare and life-limiting genetic type.
Ehlers-Danlos Australia fully supports this and ensures we post about this day each May and go red for the day to help support our Vascular Aussie EDS buddies and those worldwide.
A UK charity set up to raise awareness for Vascular Ehlers-Danlos Syndrome. While they are in the UK they have help available for Australians with vEDS led by Brad and his Wife for the estimated 280 people with vEDS in Australia. They offer Zoom support group meetings and other benefits listed on their site.