Kirstin MaltbyMay 5, 20232 minZebrasWhy do people with Ehlers-Danlos Syndrome (EDS) call themselves "Zebras"? This is based on an old medical quote stating "when you hear...
Kirstin MaltbyFeb 8, 20232 minTubie Stories - KristieKirstie’s story on having a feeding tube with EDS for Feeding Tube Awareness Week.
Kirstin MaltbyFeb 7, 20233 minEhlers-Danlos Tubies StoriesDuring Feeding Tube Awareness Week some of our Ehlers-Danlos warriors share stories with feeding tubes caused by complications from EDS
Kirstin MaltbyFeb 7, 20233 minFeeding Tubes and Ehlers-Danlos SyndromesInformation on some of the types of feeding tubes rhat might be required in some EDS patients with gastro-motility issues.